Comments for CCSVI Calgary http://www.ccsvicalgary.org Spreading the word about CCSVI in Multiple Sclerosis Sun, 11 Dec 2011 02:21:08 -0700 hourly 1 http://wordpress.org/?v=3.1.1 Comment on How to Help by Irmgard http://www.ccsvicalgary.org/how-to-help/comment-page-1/#comment-834 Irmgard Sun, 11 Dec 2011 02:21:08 +0000 http://www.ccsvicalgary.org/?page_id=25#comment-834 Really? That is your solution to the illness? That does not even make sense. I HAVE MS, and that was the most amazingly irritating statement I have ever read. You think pillow location has anything to do with this disease? Obviously you know what you are talking about - after all, this is very unconventional and most certainly the very first time anybody ever thought of the shape of your pillow or how you sleep being responsible for having MS! You might want to read up on this illness before you comment. I am so sick and tired of people thinking they know something, when in reality, they know NOTHING and just blabber, so they can feel important! Please do not share that with the rest of us, especially with the ones who know what it is like, because they have the disease. It is beyond disrespectful. You put our illness into the realm of imagination. Really? That is your solution to the illness? That does not even make sense. I HAVE MS, and that was the most amazingly irritating statement I have ever read. You think pillow location has anything to do with this disease? Obviously you know what you are talking about – after all, this is very unconventional and most certainly the very first time anybody ever thought of the shape of your pillow or how you sleep being responsible for having MS! You might want to read up on this illness before you comment. I am so sick and tired of people thinking they know something, when in reality, they know NOTHING and just blabber, so they can feel important! Please do not share that with the rest of us, especially with the ones who know what it is like, because they have the disease. It is beyond disrespectful. You put our illness into the realm of imagination.

]]> Comment on October General Meeting on the 13 by ccsvi calgary http://www.ccsvicalgary.org/2011/09/october-general-meeting-on-the-13/comment-page-1/#comment-821 ccsvi calgary Tue, 29 Nov 2011 05:22:20 +0000 http://www.ccsvicalgary.org/?p=925#comment-821 Sherry - I think you are referring to something in December - not October. Sherry – I think you are referring to something in December – not October.

]]> Comment on October General Meeting on the 13 by Sherry Drew http://www.ccsvicalgary.org/2011/09/october-general-meeting-on-the-13/comment-page-1/#comment-816 Sherry Drew Sat, 26 Nov 2011 18:55:53 +0000 http://www.ccsvicalgary.org/?p=925#comment-816 There is a bit of confusion in regards to the meeting. The meeting in CALGARY is on the 12th. Dr. Murakami is also speaking to MS patients and Lyme patients in the Crowsnest Pass on the 13. So...Calgary is the 12. There is a bit of confusion in regards to the meeting. The meeting in CALGARY is on the 12th. Dr. Murakami is also speaking to MS patients and Lyme patients in the Crowsnest Pass on the 13. So…Calgary is the 12.

]]> Comment on November General Meeting Nov 10th by Jodi Johnston http://www.ccsvicalgary.org/2011/10/november-general-meeting-nov-10th/comment-page-1/#comment-784 Jodi Johnston Mon, 07 Nov 2011 18:16:03 +0000 http://www.ccsvicalgary.org/?p=928#comment-784 I can't make it to this one as I live in Cranbrook. BC. i haven't been able to come to any of the meetings. I already had the CCSVI treatment in India. Works really well. Too bad Canada where I have lived my whole life couldn't help me!! We is to re-mortgage our house to pay for me to get there but it was worth it!! Yes some symptoms are coming back like walking. I want to find out about the new findings that Edmonton has found. Thank you for including me for this meeting and sorry I won't be there. Jodi I can’t make it to this one as I live in Cranbrook. BC. i haven’t been able to come to any of the meetings. I already had the CCSVI treatment in India. Works really well. Too bad Canada where I have lived my whole life couldn’t help me!! We is to re-mortgage our house to pay for me to get there but it was worth it!! Yes some symptoms are coming back like walking. I want to find out about the new findings that Edmonton has found. Thank you for including me for this meeting and sorry I won’t be there.

Jodi

]]> Comment on November General Meeting Nov 10th by Al Stretten http://www.ccsvicalgary.org/2011/10/november-general-meeting-nov-10th/comment-page-1/#comment-782 Al Stretten Mon, 07 Nov 2011 18:13:17 +0000 http://www.ccsvicalgary.org/?p=928#comment-782 Any chance that a transcript of Dr. Murray Hennings' talk could be made available on our website? Al the best- Al Any chance that a transcript of Dr. Murray Hennings’ talk could be made available on our website?

Al the best- Al

]]> Comment on November General Meeting Nov 10th by Sonya (aka Sonny) King http://www.ccsvicalgary.org/2011/10/november-general-meeting-nov-10th/comment-page-1/#comment-778 Sonya (aka Sonny) King Mon, 07 Nov 2011 00:40:31 +0000 http://www.ccsvicalgary.org/?p=928#comment-778 Darn - Nov 10th has the long weekend on the heels on the meeting, I would have REALLY liked to go to this, I am be unable to make it due to prior long weekend commitments! Will there be follow-up minutes/action items? Darn – Nov 10th has the long weekend on the heels on the meeting, I would have REALLY liked to go to this, I am be unable to make it due to prior long weekend commitments! Will there be follow-up minutes/action items?

]]> Comment on October General Meeting on the 13 by ccsvi calgary http://www.ccsvicalgary.org/2011/09/october-general-meeting-on-the-13/comment-page-1/#comment-705 ccsvi calgary Fri, 07 Oct 2011 20:32:33 +0000 http://www.ccsvicalgary.org/?p=925#comment-705 The only person who can answer that is Gerry. I presume it is. The only person who can answer that is Gerry. I presume it is.

]]> Comment on October General Meeting on the 13 by Larry Llewellyn http://www.ccsvicalgary.org/2011/09/october-general-meeting-on-the-13/comment-page-1/#comment-704 Larry Llewellyn Fri, 07 Oct 2011 16:25:07 +0000 http://www.ccsvicalgary.org/?p=925#comment-704 Is the meeting on the 13th still on? Is the meeting on the 13th still on?

]]> Comment on Updated: Tim Donovan’s New Hope For MS Tour 2011 by Linda Maschmeyer http://www.ccsvicalgary.org/2011/07/tim-donovans-new-hope-for-ms-tour-2011/comment-page-1/#comment-558 Linda Maschmeyer Thu, 21 Jul 2011 03:11:20 +0000 http://www.ccsvicalgary.org/?p=868#comment-558 Can't type today obviously. Sorry. L. Can’t type today obviously. Sorry. L.

]]> Comment on Updated: Tim Donovan’s New Hope For MS Tour 2011 by Linda Maschmeyer http://www.ccsvicalgary.org/2011/07/tim-donovans-new-hope-for-ms-tour-2011/comment-page-1/#comment-557 Linda Maschmeyer Thu, 21 Jul 2011 03:10:06 +0000 http://www.ccsvicalgary.org/?p=868#comment-557 We were so pleased to attend last night's meeting at Phil's . I gave out 4 posters at the MS Clinic today, the secretary posted one on the bulletin board and we discussed it thoroughly with Mel's new neurologist, Dr. Marcus Koch, fairly newly arrived from Holland. He's maintaining the "official position" that he believes the procedure doesn't work as well or as freuently as is being touted, but doesn't have any problem with his patients pursuing CCSVI if they feel it's their best option, and is happy to do the follow-up. His personal big question is the stent, which he has concerns about as they are not currently being made for veins, but for arteries. Because of that, he says they have a propensity to causing thrombosis. That was his only real caution. Not as bad as the last duffer. Anyway, we have dispersed the posters today and will do more during the weekend. plus we want to register to be there. Thansk again. Lindy We were so pleased to attend last night’s meeting at Phil’s . I gave out 4 posters at the MS Clinic today, the secretary posted one on the bulletin board and we discussed it thoroughly with Mel’s new neurologist, Dr. Marcus Koch, fairly newly arrived from Holland. He’s maintaining the “official position” that he believes the procedure doesn’t work as well or as freuently as is being touted, but doesn’t have any problem with his patients pursuing CCSVI if they feel it’s their best option, and is happy to do the follow-up. His personal big question is the stent, which he has concerns about as they are not currently being made for veins, but for arteries. Because of that, he says they have a propensity to causing thrombosis. That was his only real caution. Not as bad as the last duffer. Anyway, we have dispersed the posters today and will do more during the weekend. plus we want to register to be there. Thansk again. Lindy

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